"CCHS UK is a charity dedicated to supporting individuals and families affected by Congenital Central Hypoventilation Syndrome (CCHS). CCHS is a rare genetic disorder that affects the autonomic control of breathing, especially during sleep. CCHS UK is a charity dedicated to supporting individuals and families affected by Congenital Central Hypoventilation

Syndrome (CCHS). CCHS is a rare genetic disorder that affects the autonomic control of breathing, especially during sleep.

The charity's primary mission is to provide information, resources, and a supportive community for those living with CCHS. They work towards raising awareness about the condition, fostering research initiatives, and advocating for improved medical care and understanding of CCHS within the healthcare system.

Its funding comes from individuals through fundraising and legacies."