One in 700 children are born with this condition - about 1,000 a year in the UK.
CLAPA provides information, advice and one to one support through its national network of branches. We also provide support and information to new parents, specialised bottles and teats, activities for families and advice on accessing treatment for adults.
CLAPA is also dedicated to involving patients and parents in their treatment, and works closely with specialist Cleft Teams and
researchers to improve standards of care.
CLAPA’s main functions are:
- Working to improve cleft care in the UK by representing the needs of people affected by
cleft
- Creating a UK?wide ‘cleft community’ of people with and affected by the condition to
provide mutual support
- Providing specialist bottles and teats for babies with a cleft to parents, carers and health
professionals
- Training volunteer Parent and Peer Contacts to provide one?on?one support to others in
need
- Developing support for children and young people with a cleft at school and in social settings
through a range of activities such as confidence?building Residential Weekends
- Encouraging and supporting research into the causes and treatment of cleft lip and palate
- Producing and distributing a range of unique information leaflets
- Raising awareness of cleft amongst the general public and fundraising in the community
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